Pulmonary Hypertension

Life Hacks that Help Me to Live with PH - Pulmonary Hypertension News Life Hacks that Help Me to Live with PH - Pulmonary Hypertension News Posted: 31 Jan 2020 07:00 AM PST We don't always have a choice about what life throws our way. But our response to challenges is something we can control. Living with pulmonary hypertension (PH), I don't always have control over my body. With that lack of control comes frustration. However, I've found some coping strategies that improve my quality of life with PH. A chronic illness like  pulmonary hypertension can affect someone in a variety of ways. Daily life with energy-depleting symptoms is taxing. Through trial and error, I have found some hacks that can help make life with PH a little simpler for me. When discussing energy within the rare disease communities, we often mention that we are out of "spoons." For those of you unfamiliar with ...

STONE: Don't let winter take your breath away - Odessa American STONE: Don't let winter take your breath away - Odessa American Posted: 19 Jan 2020 12:00 AM PST Having had a mild winter thus far, in fact one of the warmest recorded in the Permian Basin, the past week finally brought a steady flow of cooler weather.  While the change may be welcomed by many, colder temperatures can be very difficult for those suffering from chronic respiratory diseases (CRD), such as emphysema, occupational lung diseases, pulmonary hypertension, and asthma.  Fall and winter are among the most challenging times of year in caring for our respiratory health, particularly those already managing a chronic illness. According to the American Thoracic Society, flare up of CRD symptoms occur twice as often in the winter than during the summer months. A major contributing factor to this is cold, dry air. Our lungs prefer a very warm and mois...

Drug-Induced Pulmonary Arterial Hypertension: A More Complicated Prognosis - Pulmonology Advisor Drug-Induced Pulmonary Arterial Hypertension: A More Complicated Prognosis - Pulmonology Advisor Posted: 22 Apr 2019 12:00 AM PDT While methamphetamine use had been implicated in myocardial infarction, cardiac arrhythmias, and ischemic cardiomyopathy, recent reports have indicated that intravenous (IV) methamphetamine also attacks the lung tissue. 1 Data compiled at a Stanford University pulmonology clinic in California reported that 85% of drug-induced pulmonary arterial hypertension (D-PAH) stemmed from methamphetamine use. 1 The prognosis for these patients was substantially worse than for patients with idiopathic PAH; the median 5-year survival for patients with D-PAH was 35%. 1 In patients with a history of IV drug use, HIV and hepatitis C virus (HCV) coinfection can complicate the course of PAH. 2 Individuals with HIV who have a higher...

Acceleron’s pulmonary hypertension treatment meets main goal, shares soar 79% - Physician&#039;s Weekly Acceleron’s pulmonary hypertension treatment meets main goal, shares soar 79% - Physician&#039;s Weekly Posted: 27 Jan 2020 02:19 PM PST (Reuters) – Acceleron Pharma Inc <XLRN.O> said on Monday its investigational treatment for a rare, deadly lung disease called pulmonary arterial hypertension met the main goal in a mid-stage trial, sending its shares surging 79%. The treatment, sotatercept, showed significant reduction in pulmonary vascular resistance versus placebo at week 24. It also showed significant improvements in patients functional capacity, which was determined by a six minute walk test. Pulmonary arterial hypertension, or PAH, occurs when arteries in the lungs constrict, forcing the heart to work harder, often leading to heart failure. Its symptoms include shortness of breath and fatigue. The disea...

IPF Prognosis Generally Better for Women and Younger People... - Pulmonary Fibrosis News IPF Prognosis Generally Better for Women and Younger People... - Pulmonary Fibrosis News Posted: 24 Jan 2020 05:30 AM PST Female sex, younger age, and a better lung function at time of diagnosis tend to support a a better overall prognosis among people with idiopathic pulmonary fibrosis (IPF), a large registry-based study reports. In contrast, the presence of pulmonary hypertension (PH), lung cancer , and long-term use of oxygen therapy were associated with a higher risk of death. The study, " The European MultiPartner IPF registry (EMPIRE): validating long-term prognostic factors in idiopathic pulmonary fibrosis , " was published in the journal Respiratory Research . Although the prognosis for IPF is usually poor, its clinical course is highly variable, ranging from a rapid decline in lung function in some patients to ...

Acceleron&#039;s pulmonary hypertension treatment meets main goal, shares soar 79% - Reuters Acceleron&#039;s pulmonary hypertension treatment meets main goal, shares soar 79% - Reuters Posted: 27 Jan 2020 01:36 PM PST (Reuters) - Acceleron Pharma Inc ( XLRN.O ) said on Monday its investigational treatment for a rare, deadly lung disease called pulmonary arterial hypertension met the main goal in a mid-stage trial, sending its shares surging 79%. The treatment, sotatercept, showed significant reduction in pulmonary vascular resistance versus placebo at week 24. It also showed significant improvements in patients functional capacity, which was determined by a six minute walk test. Pulmonary arterial hypertension, or PAH, occurs when arteries in the lungs constrict, forcing the heart to work harder, often leading to heart failure. Its symptoms include shortness of breath and fatigue. The disease has no cure, but there are treatme...

After an Intense Journey, We&#039;re Carrying Hope into the New Decade - Pulmonary Hypertension News After an Intense Journey, We&#039;re Carrying Hope into the New Decade - Pulmonary Hypertension News Posted: 13 Jan 2020 12:00 AM PST Over the past decade, my son and our family have been through an intense journey from pulmonary hypertension (PH) to transplant. Most of the big, scary, sad, joyful, and incredible moments were squeezed into the past 10 years. Cullen was two years into his diagnosis when the world ushered in 2010. Life before PH had become a faded memory. Pictures of Cullen playing sports were stored away upon his request. Reminders of what he could no longer do were too painful. At 10, the young adult in him was more prominent than the child. He started the decade sore from the placement of a new central line and nervous about an upcoming trip to Lucile Packard Children's Hospital ...